CPPENA Annual Fall Meeting - Patient Power in home EN and PN: Navigating Advocacy and Leading Change

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Speakers:

Marek Lichota, Leah Gramlich

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Speakers: 

• Marek Lichota - HPN Patient, Dietitian, President of the Appetite for Life patient association, Kraków, Poland
• Leah Gramlich - MD, FRCP -  Gastroenterologist and Physician Nutrition Specialist. Presentation "Considerations in Patient-Oriented Care and Research: Creating leaders in patients" 

WEBINAR DESCRIPTION: 

The 2024 CPPENA Annual Fall Meeting revolves around the central theme of patient advocacy. This conference will highlight insights on how to navigate advocacy to effect change, both on an individual patient level and within the broader community. 

This year’s symposium aims to establish a foundation for our CPPENA members, patients and care takers alike, providing them with the knowledge and skills essential for becoming patient advocates and catalysts of change. Towards the end of the symposium we invite all attendees to participate in an open discussion as an opportunity to exchange experiences and challenges around advocacy. Attendees are encouraged to ask questions to our guest speakers during this time. 

About the Speakers:

Marek Lichota - HPN Patient, Dietitian, President of the Appetite for Life patient association, Kraków, Poland - has been suffering from Crohn’s disease since 2002. Due to complications of this underlying disease in 2008 he experienced massive bowel resections. Since then, he requires home parenteral nutrition and aims to prove that living with artificial nutritional support does not exclude people from living a satisfactory life. Based on his disease and therapy related experiences, he founded an Appetite for Life Association for patients requiring home parenteral and enteral nutrition in Poland. Marek Lichota is a member of numerous scientific, professional and patient organizations which stand for education, raising awareness and patient empowerment in particular disease areas and therapies.  His interests include clinical nutrition, chronic intestinal failure and inflammatory bowel diseases.  He is a co-author of POLSPEN (Polish Society for Parenteral, Enteral Nutrition and Metabolism) and ESPEN (European Society for Parenteral, Enteral Nutrition and Metabolism) guidelines, which refer to Home Parenteral and Enteral Nutrition and Chronic Intestinal Failure. In 2022 he completed a bachelor degree in Human Nutrition and Dietetics. Privately, Marek is a happy husband and the father of two children, who brings a lot of joy and strength to his life.
 

Leah Gramlich - MD, FRCP - Leah Gramlich is a Gastroenterologist and Physician Nutrition Specialist. She graduated from the Faculty of Medicine at University of Alberta in 1987 and currently holds a position as Professor of Medicine at the University of Alberta. She did her Internal Medicine training in Akron, Ohio and completed a Gastroenterology fellowship at the University of Alberta and subsequently did a fellowship in nutrition and metabolism at the Deaconess Hospital, Harvard University in Boston Massachusetts. In addition to her clinical roles in Gastroenterology and Nutrition, Dr. Gramlich is the provincial medical advisor for Nutrition Services in Alberta Health Services. Her key research areas include nutrition support including enteral and parenteral nutrition, home nutrition support, malnutrition and enhanced recovery. She has an interest in implementation science and uses this approach to advance nutrition care locally, nationally and internationally.

Dr. Gramlich is founding president of the Canadian Nutrition Society and a former member of the ASPEN Board of directors. She is a founding member and current co-chair of the Canadian Malnutrition Task force. She is the Chair of the Nutrition Science Advisory Committee of Health Canada. She has published more than 125 peer reviewed articles as author or co-author and received multiple grants for her research.

Original Source: "CPPENA Annual Fall Meeting" Tuesday, October 31, 2023

The opinions expressed by the participants at this session reflect personal experiences and are meant for sharing and to stimulate interactive discussions. As such some of these may not reflect the opinions or beliefs of the Canadian Nutrition Society or CPPENA. This information does not replace guidance from your healthcare provider.

Length: 1:55:44

Type: File

Last Updated: October 31, 2023