Canadian Patient Parenteral and Enteral Nutrition Alliance (CPPENA)
The Canadian Patient Parenteral and Enteral Nutrition Alliance (CPPENA) is a national group of provincial chapters made up of patients and caregivers living with home nutrition support. CPPENA brings this network together to collaborate on advocacy, education and networking opportunities that aim to have a positive impact on the lives of patients, caregivers and families. CPPENA is led by an Advisory Committee that is representative of the provincial chapters. CPPENA is currently focusing on adult home parenteral nutrition (HPN) patients, with plans in the future to include pediatric HPN and adult/pediatric home enteral nutrition (HEN) patients.
Mission:
CPPENA aims to increase awareness, and provide resources, education and peer support to individuals who live with and use home nutrition therapy to improve quality of life and health outcomes.
Vision:
Patients and caregivers living with home nutrition therapy have access to and know where to find the resources, tools, and the community of support that is needed to live optimally.
CLICK HERE for CPPENA Advisory Committee CLICK HERE for Website and Conference Planning Subgroup
Read patient stories
For information on the Canadian Home Total Parenteral Nutrition Registry - CLICK HERE
Canadian Home TPN Registry national coordinator:
Katherine Schwenger, RD, PhD
Department of Medicine, Division of Gastroenterology
Toronto General Hospital, University Health Network
Katherine.Schwenger@uhnresearch.ca
Upcoming Event
CPPENA Presents: "Chasing your dreams"
Zoom Meeting with speaker Emma Tillman, Pharm.D., Ph.D.,Indiana University School of Medicine
Tues. Sept. 20, 2022
1:00 - 2:00pm ET
Save the date!
CPPENA Annual Fall Virtual meeting: Mental Health for individuals living with home nutrition therapy
Tuesday, October 25, 2022 (via Zoom)
2:00 - 4:00pm ET
Speakers:
- Tiffany Taft, PsyD, MIS - Associate Professor, Division of Gastroenterology & Hepatology, Northwestern University Feinberg School of Medicine:
"Navigating the Mental Health Impacts of Home Nutrition"
- Erin Beckwell, BSW, MSW, RSW (SK):
"Overlaps and Collisions: "Navigating Life at the Intersection of Trauma and Chronic Health Conditions"
- Trinity Lowthian:
"From Surviving to Thriving on PN"
Past Events
CPPENA Presents: "Beat the Heat"
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Meeting: Personal experiences with dressing changes, keeping active and "beating the heat” during the warmer summer months.
To access the slide deck and meeting recording, visit the CNS Education Portal. Contact info@cns-scn.ca for instructions
CPPENA Presents: Home (Nutrition) for the Holidays
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Webinar: Celebrating Shared Experiences and Practices to Enhance the Holiday Season for Patients and their Loved Ones
To access the slide decks and webinar recording, visit the CNS Education Portal. Contact info@cns-scn.ca for instructions.
Virtual Patient Conference
CPPENA held its first virtual patient conference on Thursday, October 7th from 4:00pm to 7:00pm EST. Download Flyer.
To access the recordings, visit the CNS Education Portal. Contact info@cns-scn.ca for instructions.
See Agenda
Patient and Caregiver Needs Assessment
Thank you to the more than 140 patients, caregivers and healthcare professionals who responded to the CPPENA Needs Assessment that was circulated from June to August 15th. We are extremely pleased with this response rate and with the valuable input that was received. This input will guide future activities of CPPENA, including the program for our upcoming Patient Conference (October 7th, 2021), future webinars, and new resources and networking opportunities that we heard will be valuable for the CPPENA network.
Download Results Summary
CPPENA Funders
Champion Sponsor
Community Sponsors
